{"id":22766,"date":"2017-01-25T16:35:00","date_gmt":"2017-01-25T15:35:00","guid":{"rendered":"https:\/\/sahb.ch\/ho-il-diesel-nel-sangue\/"},"modified":"2026-08-27T16:48:50","modified_gmt":"2026-08-27T14:48:50","slug":"ho-il-diesel-nel-sangue","status":"publish","type":"post","link":"https:\/\/sahb.ch\/it\/ho-il-diesel-nel-sangue\/","title":{"rendered":"\u201cHo il die\u00adsel nel sangue\u201d"},"content":{"rendered":" \n
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\u00c8 suc\u00adces\u00adso duran\u00adte una lezio\u00adne di gin\u00adna\u00adsti\u00adca in ter\u00adza media: l\u2019in\u00adse\u00adgnan\u00adte ha nota\u00adto che il gio\u00adva\u00adne Wal\u00adter Mar\u00adti tra\u00adsci\u00adna\u00adva i pie\u00addi. Gli ha con\u00adsi\u00adglia\u00adto, insie\u00adme a sua madre, di fare accer\u00adta\u00admen\u00adti medi\u00adci. Uno spe\u00adcia\u00adli\u00adsta ha dia\u00adgno\u00adsti\u00adca\u00adto la sin\u00addro\u00adme di Cha\u00adr\u00ad\u00adcot-Marie-Tooth (sin\u00addro\u00adme CMT) sul\u00adla base dei sin\u00adto\u00admi gi\u00e0 noti. <\/p>\n

Allo\u00adra come oggi non esi\u00adste una tera\u00adpia per que\u00adsta malat\u00adtia. Wal\u00adter Mar\u00adti non sape\u00adva come si sareb\u00adbe evo\u00adlu\u00adta la sin\u00addro\u00adme CMT. Per\u00adci\u00f2 ha con\u00adti\u00adnua\u00adto a vive\u00adre nor\u00admal\u00admen\u00adte ed \u00e8 diven\u00adta\u00adto auti\u00adsta di camion. All\u2019i\u00adni\u00adzio ha gui\u00adda\u00adto per un po\u2019 sul\u00adle stra\u00adde sviz\u00adze\u00adre, poi per diver\u00adsi anni ver\u00adso i pae\u00adsi scan\u00addi\u00adna\u00advi. \u00abL\u00ec ho sco\u00adper\u00adto qual\u00adche ango\u00adlo mera\u00advi\u00adglio\u00adso del\u00adla ter\u00adra\u00bb, rac\u00adcon\u00adta. Ma i lun\u00adghi viag\u00adgi sono diven\u00adta\u00adti pi\u00f9 fati\u00adco\u00adsi, per sca\u00adri\u00adca\u00adre i pesan\u00adti pal\u00adlet gli man\u00adca\u00adva sem\u00adpre pi\u00f9 la for\u00adza fisica. <\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/section>\n \n\n \n\n

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Sin\u00addro\u00adme di Charcot-Marie-Tooth
\n<\/strong>La sin\u00addro\u00adme CMT \u00e8 una del\u00adle malat\u00adtie ere\u00addi\u00adta\u00adrie pi\u00f9 comu\u00adni del siste\u00adma ner\u00advo\u00adso peri\u00adfe\u00adri\u00adco. La malat\u00adtia \u00e8 dif\u00adfu\u00adsa quan\u00adto la sin\u00addro\u00adme di Down, la fibro\u00adsi cisti\u00adca e l\u2019au\u00adti\u00adsmo infantile. 
\n<\/strong><\/p>\n

Esi\u00adsto\u00adno diver\u00adsi tipi di sin\u00addro\u00adme CMT, ma in ogni caso la malat\u00adtia ha un decor\u00adso pro\u00adgres\u00adsi\u00advo. Non esi\u00adste una tera\u00adpia. I sin\u00adto\u00admi tipi\u00adci sono una capa\u00adci\u00adt\u00e0 di cam\u00admi\u00adna\u00adre ridot\u00adta, una defor\u00admi\u00adt\u00e0 del pie\u00adde e un affa\u00adti\u00adca\u00admen\u00adto pi\u00f9 rapi\u00addo dei musco\u00adli. Gra\u00adzie a esa\u00admi appro\u00adfon\u00addi\u00adti, oggi \u00e8 pos\u00adsi\u00adbi\u00adle sta\u00adbi\u00adli\u00adre la dia\u00adgno\u00adsi per alcu\u00adne for\u00adme tra\u00admi\u00adte ana\u00adli\u00adsi del sangue. <\/p>\n <\/div>\n \n\n <\/div>\n <\/div>\n <\/div>\n<\/section>\n\n\n

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Rico\u00admin\u00adcia\u00adre com\u00adple\u00adta\u00admen\u00adte da capo
\n<\/strong>I sin\u00adto\u00admi e la sua capa\u00adci\u00adt\u00e0 di cam\u00admi\u00adna\u00adre sono peg\u00adgio\u00adra\u00adti visi\u00adbil\u00admen\u00adte. \u00abDopo un esa\u00adme all\u2019In\u00adsel\u00adspi\u00adtal di Ber\u00adna, i medi\u00adci mi han\u00adno con\u00adsi\u00adglia\u00adto di iscri\u00adver\u00admi all\u2019as\u00adsi\u00adcu\u00adra\u00adzio\u00adne inva\u00adli\u00addi\u00adt\u00e0\u00bb, rac\u00adcon\u00adta Wal\u00adter Mar\u00adti e aggiun\u00adge: \u00abLascia\u00adre la stra\u00adda mi \u00e8 costa\u00adto molto\u00bb. 
\n<\/strong><\/p>\n

Wal\u00adter Mar\u00adti ha pre\u00adso in mano il suo desti\u00adno e ha com\u00adple\u00adta\u00adto con suc\u00adces\u00adso la scuo\u00adla com\u00admer\u00adcia\u00adle men\u00adtre lavo\u00adra\u00adva. Oggi lavo\u00adra al 40% come impie\u00adga\u00adto ammi\u00adni\u00adstra\u00adti\u00advo. Anche se la malat\u00adtia \u00e8 pro\u00adgre\u00addi\u00adta, pu\u00f2 anco\u00adra cam\u00admi\u00adna\u00adre per bre\u00advi distan\u00adze. Ma per rag\u00adgiun\u00adge\u00adre il luo\u00adgo di lavo\u00adro lon\u00adta\u00adno, ha biso\u00adgno di un\u2019auto. <\/p>\n


\nA sini\u00adstra: con l\u2019a\u00adiu\u00adto di tre leve, Wal\u00adter Mar\u00adti spo\u00adsta il sedi\u00adle del con\u00addu\u00adcen\u00adte nel\u00adla posi\u00adzio\u00adne cor\u00adret\u00adta davan\u00adti al volante.<\/em>
\nA destra: tra\u00admi\u00adte tele\u00adco\u00adman\u00addo apre il por\u00adtel\u00adlo\u00adne poste\u00adrio\u00adre e azio\u00adna il sol\u00adle\u00adva\u00adto\u00adre poste\u00adrio\u00adre. Il siste\u00adma di aggan\u00adcio a pavi\u00admen\u00adto fis\u00adsa la sedia a rotel\u00adle duran\u00adte la guida. <\/em><\/p>\n

Cari\u00adco semplice
\n<\/strong>Il lun\u00adgo viag\u00adgio non pesa al 47enne. Al con\u00adtra\u00adrio. \u00abHo il die\u00adsel nel san\u00adgue\u00bb, dice riden\u00addo. Il suo VW T6 \u00e8 sta\u00adto adat\u00adta\u00adto alle sue esigenze. 
\n<\/strong><\/p>\n

Wal\u00adter Mar\u00adti entra nel\u00adl\u2019in\u00adter\u00adno del\u00adl\u2019au\u00adto con la sedia a rotel\u00adle elet\u00adtri\u00adca tra\u00admi\u00adte la piat\u00adta\u00adfor\u00adma ele\u00adva\u00adtri\u00adce mon\u00adta\u00adta sul por\u00adtel\u00adlo\u00adne poste\u00adrio\u00adre. Tut\u00adto que\u00adsto lo con\u00adtrol\u00adla con un tele\u00adco\u00adman\u00addo. Nel vei\u00adco\u00adlo fis\u00adsa e assi\u00adcu\u00adra la sedia a rotel\u00adle elet\u00adtri\u00adca con un siste\u00adma di fis\u00adsag\u00adgio spe\u00adcia\u00adle. Poi si tra\u00adsfe\u00adri\u00adsce sul sedi\u00adle a sei rego\u00adla\u00adzio\u00adni elet\u00adtri\u00adco (si trat\u00adta di una base sedi\u00adle rego\u00adla\u00adbi\u00adle elet\u00adtro\u00admec\u00adca\u00adni\u00adca\u00admen\u00adte in sei dire\u00adzio\u00adni, su cui \u00e8 mon\u00adta\u00adto il sedi\u00adle del\u00adl\u2019au\u00adto), con cui si spo\u00adsta ver\u00adso il volan\u00adte. Ora il viag\u00adgio pu\u00f2 iniziare. <\/p>\n

Gui\u00adda\u00adre l\u2019au\u00adto con coman\u00addo manuale
\n<\/strong>Con la mano destra azio\u00adna la leva del\u00adl\u2019ac\u00adce\u00adle\u00adra\u00adto\u00adre e del fre\u00adno e con il dito le fun\u00adzio\u00adni secon\u00adda\u00adrie come frec\u00adce, clac\u00adson e ter\u00adgi\u00adcri\u00adstal\u00adli. Gui\u00adda l\u2019au\u00adto con la mano sini\u00adstra tra\u00admi\u00adte una mano\u00adpo\u00adla gire\u00advo\u00adle sul volan\u00adte. Esse\u00adre mobi\u00adle resti\u00adtui\u00adsce a Wal\u00adter Mar\u00adti un gran\u00adde pez\u00adzo di liber\u00adt\u00e0. \u00abSono feli\u00adce di fare gite o vacan\u00adze con gli ami\u00adci\u00bb, rac\u00adcon\u00adta Wal\u00adter Mar\u00adti raggiante. 
\n<\/strong><\/p>\n


\nWal\u00adter Mar\u00adti entra nel\u00adl\u2019in\u00adter\u00adno del vei\u00adco\u00adlo tra\u00admi\u00adte la ram\u00adpa ribaltabile.<\/em><\/p>\n <\/div>\n <\/div>\n <\/div>\n <\/div>\n <\/section>\n \n\n \n\n

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La per\u00adso\u00adna
\n<\/strong>Wal\u00adter Mar\u00adti \u00e8 nato nel 1969 e vive da solo in un acco\u00adglien\u00adte appar\u00adta\u00admen\u00adto di 2\u00bd loca\u00adli. Nel\u00adla sua gio\u00advi\u00adnez\u00adza i medi\u00adci gli han\u00adno dia\u00adgno\u00adsti\u00adca\u00adto la sin\u00addro\u00adme di Cha\u00adr\u00ad\u00adcot-Marie-Tooth, in bre\u00adve sin\u00addro\u00adme CMT. Nono\u00adstan\u00adte ci\u00f2 ha com\u00adple\u00adta\u00adto un appren\u00addi\u00adsta\u00adto come auti\u00adsta di camion e ha eser\u00adci\u00adta\u00adto la pro\u00adfes\u00adsio\u00adne per pi\u00f9 di quin\u00addi\u00adci anni. A cau\u00adsa del\u00adle pro\u00adgres\u00adsi\u00adve limi\u00adta\u00adzio\u00adni fisi\u00adche si \u00e8 riqua\u00adli\u00adfi\u00adca\u00adto e ha fre\u00adquen\u00adta\u00adto una scuo\u00adla com\u00admer\u00adcia\u00adle. Oggi Wal\u00adter Mar\u00adti lavo\u00adra part-time come impie\u00adga\u00adto ammi\u00adni\u00adstra\u00adti\u00advo in ufficio. 
\n<\/strong><\/p>\n <\/div>\n \n\n <\/div>\n <\/div>\n <\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"

Nono\u00adstan\u00adte la sua malat\u00adtia, che com\u00adpro\u00admet\u00adte progressivamente
\n la sua capa\u00adci\u00adt\u00e0 di cam\u00admi\u00adna\u00adre, Wal\u00adter Mar\u00adti ha rea\u00adliz\u00adza\u00adto il suo sogno di auti\u00adsta di camion. Quan\u00addo non \u00e8 sta\u00adto pi\u00f9 pos\u00adsi\u00adbi\u00adle, si \u00e8 riqua\u00adli\u00adfi\u00adca\u00adto. Ma gui\u00adda\u00adre l\u2019au\u00adto gli \u00e8 rima\u00adsto: gra\u00adzie al suo
\n VW T6 adattato. <\/p>\n","protected":false},"author":16,"featured_media":22767,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"wp_typography_post_enhancements_disabled":false,"footnotes":""},"categories":[258,3937],"tags":[3943,3793],"class_list":["post-22766","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-auto","category-exma-info","tag-elektrorollstuehle-und-antriebe","tag-pflege-und-komfort"],"acf":[],"yoast_head":"\n"Ho il diesel nel sangue" | SAHB Hilfsmittelberatung<\/title>\n<meta name=\"description\" content=\"Nonostante la sua malattia, che compromette progressivamente la sua capacit\u00e0 di camminare, Walter Marti ha realizzato il suo sogno di autista di camion. Quando non \u00e8 stato pi\u00f9 possibile, si \u00e8 riqualificato. Ma guidare l'auto gli \u00e8 rimasto: grazie al suo VW T6 adattato.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/sahb.ch\/it\/ho-il-diesel-nel-sangue\/\" \/>\n<meta property=\"og:locale\" content=\"it_IT\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\""Ho il diesel nel sangue" | SAHB Hilfsmittelberatung\" \/>\n<meta property=\"og:description\" content=\"Nonostante la sua malattia, che compromette progressivamente la sua capacit\u00e0 di camminare, Walter Marti ha realizzato il suo sogno di autista di camion. Quando non \u00e8 stato pi\u00f9 possibile, si \u00e8 riqualificato. 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